People are increasingly worried about taking disease predisposition tests due to fears that their genetic information could be leaked to insurance companies. The concern is that sensitive health data, once shared, could lead to discrimination or higher premiums. The Genetic Information Nondiscrimination Act (GINA) in the US prohibits health insurers from using genetic information to determine eligibility or premiums, but it doesn’t cover life insurance, long-term care, or disability insurance.
This lack of comprehensive protection leaves individuals vulnerable to potential discrimination. Experts recommend strengthening regulatory frameworks to safeguard genetic information and ensuring transparency about how data is collected, stored, and shared.
